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RADICAL-CDG Conference 2026 - Timetable

RADICAL-CDG Conference 2026 | Leuven, Belgium
The Leuven RADICAL-CDG Conference 2026 will bring together researchers, healthcare professionals, people living with CDG, families, patient organisations and other key stakeholders for three days of scientific exchange and community engagement.

As the official kick-off meeting of the RADICAL-CDG project, the conference will provide an opportunity to present the project's vision, strengthen collaborations across Europe, discuss the latest advances in CDG research, and ensure that patient perspectives remain central to future therapeutic development.

Whether you are attending to learn about emerging research, connect with the international CDG community or participate in project activities, the sections below provide all the essential information to help you plan your participation.

๐Ÿ“… Conference Programme

13:00
โ€”
14:30
Engagement of patient organisations and the RADICAL-CDG management structure
Speakers: To be confirmed
15:00
โ€”
17:30
Scientific integration and optimising collaboration between RADICAL-CDG partners
Speakers: To be confirmed
Note
โ„น๏ธ Participation Information
Patient organisation representatives are invited to attend the first day of the meeting.

Please note that the programme has a strong technical and scientific focus.

Representatives from AESCDG and GlycoKids are expected to attend as funded partners of the RADICAL-CDG consortium.

Research outcomes or future plans discussed during the meeting are confidential and should not be communicated outside the consortium.
19:00
๐Ÿฝ Kick-off Dinner
Faculty Club
Groot Begijnhof 14
3000 Leuven
09:00
โ€”
12:30
Insights into disease mechanisms
Speaker: Prof. Kaspar Locher
ETH Zurich

Participatory research with CDG patient groups and advocates
Contributors:
Humanized Solutions
CDG & Allies
RADICAL-CDG Patient Advisory Board
14:00
โ€”
17:00
Disease models
Speaker: Prof. Charles Boone
University of Toronto
09:00
โ€”
10:00
Feedback from the 2 October parallel session
Patient outreach, dissemination and integration.
Speakers: To be confirmed
10:00
โ€”
10:30
Experience from across the Atlantic: insights from CDG Care
Speaker: Dr Ivan Duncker
11:00
โ€”
11:45
Therapies for CDG: state of the art and the way forward
Speaker: Prof. Eva Morava
11:45
โ€”
12:00
Recap and Closing Debrief
Speakers:
Prof. Gert Matthijs
Dr Vanessa Ferreira
CDG
Congenital Disorders of Glycosylation
RADICAL-CDG

Page modified at Saturday, August 8, 2026 - 13:05