STATEMENT ON COVID-19

Updated on 19th of March 2020

This is a GLOBAL recommendation.
COVID-19 outbreak prevalence and response measures vary across countries.

 

عربي: توصيات خاصة بفيروس كورونا كوفيد-19

Deutsch: ERKLÄRUNG ZUM COVID-19-AUSBRUCH

Eesti: AVALDUS COVID-19 PUHANGU KOHTA

English: STATEMENT ON COVID-19 OUTBREAK

Español: DECLARACIÓN SOBRE COVID-19

Français: DÉCLARATION SUR L'ÉPIDÉMIE DE COVID-19

Italiano: DICHIARAZIONE SULLA PANDEMIA COVID-19

Nederlands: BETREFFENDE COVID-19 UITBRAAK

Polski: OŚWIADCZENIE NA TEMAT PANDEMII COVID-19

Português: COMUNICADO SOBRE A PANDEMIA COVID-19

Slovenský: STANOVISKO K COVID-19 PANDÉMII

 

STATEMENT ENDORSED BY:

Reference Experts

Dr. Eva Morava
Mayo Clinic
Rochester, USA

Dr. Rita Barone
University Hospital of Catania
Catania, Italy

Dr. Mercedes Serrano
Hospital Sant Joan de Dèu
Barcelona, Spain

Dr. Jaak Jaeken
University Hospitals Leuven
Leuven, Belgium

Dr. David Coman
Australia

Dr. Ruqaiah Altassan
Saudi Arabia

Dr. Laia Alsina
Hospital Sant Joan de Dèu, Barcelona
Spain

Dr. Andrew Edmonson
Children’s Hospital of Philadelphia
USA

Dr. Christima Lam
University of Washington and Seattle Children’s Hospital
USA

Dr. Stephanie Grunewald
United Kingdom

Dr. Stephanie Grunewald
United Kingdom

Dr. Erik Eklund
Skane University Hospital and Lund University
Lund, Sweden

Dr. Mari-Anne Vals
Tartu University Hospital Children’s Clinic
Tartu, Estonia

Dr. Jolanta Sykut-Cegielska
The Institute of Mother and Child
Poland

Dr. Bradley S. Miller
University of Minnesota Masonic Children's HospitalUSA


Organisations

Research networks

Frontiers in CDG Consortia (FCDGC)

CDG & Allies - Professionals and Patient associations International Network (CDG&Allies-PPAIN)

MetabERN – European Reference Network for Rare Metabolic Diseases

Mayo Clinc

National Institute of Children´s Diseases (Národný Ústav Detských Chorôb), Bratislava, Slovakia

Patient associations

The Portuguese Association for CDG (APCDG)

CDG CARE

CDG UK

CDG Italia

CDG The Netherlands (VKS)

Asociación Española CDG (AESCDG)

Les P’tits CDG

Amour Fund  (USA)


Page modified at Friday, March 20, 2020 - 23:09