First, keep in mind, you are not alone. Though CDG is categorised as “rare” there is an amazing community at your fingertips working day and night to improve the lives of many people living with CDG and their family members. We want you to know everything about therapies in lay language that is available, but we suggest you enter into it at your own pace and comfort level.
Second, the therapeutic pipeline of potential treatments for CDG has never been so full of promise! Secure that you are up to date, and JOIN OUR MAILING LIST, at https://worldcdg.org/join-us
In this section you will find several major topics, explained in easy to understand language. In order to help you understand the overall content, we have identified resources and information that are transferable for CDG. Altogether, may complement the existing content and improve your comprehension about what is CDG. We hope it helps you!