Basic and Therapeutic research led by CDG families
For over a decade, the Portuguese Association for CDG, and later, CDG & Allies (founded in 2016), the family led CDG international research network, has been committed to exploring and supporting every basic and therapeutic research avenue. Both take a cutting-edge approach to accelerate finding treatments for CDG for every single person impacted by the disease. Many other patient groups are leading similar efforts! Stay tuned! Altogether, we are in a relentless pursuit of therapies!
Non - nutritional replacement therapies for CDG
There are very few approved therapeutic options for CDG, but recently there has been an increase in research and awareness that have boosted the discovery and investigation of several therapeutic options, shedding new light and hope into therapeutic avenues for CDG. Please note that the majority of the therapeutic strategies presented along this section (except for organ/cell transplantation) are currently under investigation and are not fully approved.
