CDG Information

How can you help our CDG community? Is easy! Share among your social media and other channels the information we make available within this section and website. This makes more people aware of CDG, speeds up diagnosis, and gives our CDG children and adults better care and management!

Educating yourself about CDG is vital. People living with CDG, and their family members often seek information and resources on the internet about disease prognosis, find a specialist, and obtain a diagnosis for symptoms. A major reason includes a growing interest in participating in clinical research studies and a desire to complement or better understand information discussed during a visit with a healthcare provider. The internet can be a great resource. Choosing which websites to trust is an important step in gathering reliable health information and resources dedicated to CDG. 

In this section you will find: 

• What to look for before trusting a website with CDG information and resources? 
• How to look and where to find reliable information and resources about CDG? 
• What is a scientific article and How to read?
• How to use social media, email and news safely

Authors

Vanessa Ferreira (CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG)

Revisors

Ana Verde (collaborator at CDG & Allies FCT, NOVA University), Javier López and Kevin Aguirre (research volunteers at CDG & Allies FCT, NOVA University)

Content managers

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University)