Dr. Andrew Edmondson from Children’s Hospital of Philadelphia, USA, was present on the September’s PMM2-CDG Collaboration call organized by Amour Fund to share with us the latest updates about COVID-19 and the CDG experience related with this topic. The recording is now available. Check it out!

At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for Rare Disorders (NORD®) launched its COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs.

Update on treatments and vaccines against COVID-19 under development & COVID-19: chloroquine and hydroxychloroquine only to be used in clinical trials or emergency use programmes